Seven Ways to Plan for the Cost and Burden of Supporting those with a Dementia Diagnosis

FOR IMMEDIATE RELEASE
Seven Ways to Plan for the Cost and Burden of Supporting those with a Dementia Diagnosis

Walnut Creek, CA – (April 9, 2013) It’s a tough pill to swallow but the cost of caring for those with a dementia will double by 2040 due to the increasing number of people developing the disease. The RAND Corporation released an expansive study in the New England Journal of Medicine on the financial burden and how much American families will be paying for care. According to the study, the average individual cost, including lost wages for a family member, is about $41,000 per year. With some living with Alzheimer’s for 20 years before death, that’s over $800,000 worth of care, privately purchased and given by a family member!

Linda Fodrini-Johnson, MA, MFT, CMC, Executive Director of Eldercare Services located in Walnut Creek, Oakland, San Francisco and Marin and past President of the National Association of Professional Care Managers (NAPGCM), states that these individuals will overwhelm the medical systems and the government programs. Fodrini-Johnson adds, “We can all hope and wait for a cure for Alzheimer’s or we can be realistic and start planning for these costs. It is smart to plan proactively, upon diagnosis, before the dementia really goes south.” The study points out that the baby boom generation is not prepared for this tremendous growth in needed services and families are not prepared for the real cost of caring for someone with a dementia.

Professional Care Managers can help the family budget and plan for the cost and burden of care. “My experience is that families that learn to share the care, give care with training, attend support groups, have a care manager as a “coach” and use community respite programs, are able to care longer and without placing a loved one in a facility,” says Fodrini-Johnson.

Here are seven ways a Professional Care Manager can help families early in the disease process plan for cost as well as burden:

1) Review available resources. Look at total resources available for care and plan how and when to spend those resources. In some areas, it is best to save some resources to pay for the early months in skilled care before Medicaid starts.
2) Determine who will provide the care. Look at family and friends who have committed to assist with the care and plan a system of sharing the care that doesn’t burnout or burden the primary caregiver.
3) Utilize community resources. Help the family use community resources such as respite programs and “free systems of companion care” before having to spend dollars on home care.
4) Educate families. Teach families on how to communicate in order to reduce stress, adverse behaviors and preserve dignity of the individuals with dementia.
5) Modify Homes. Teach families how to retrofit their homes for safety and recommend technology to guard against wandering.
6) Systemize the medical needs. Set up systems of medication and medical care attention that secure the best level of care.
7) Enable legal and entitlement advice. See that families have legal advice that will allow them to apply for government benefits. Educate the family on all the entitlements and benefits available – they can differ from community to community.

The bottom line is that a Professional Care Manager can often reduce the necessary expenditures and stress by preventing or delaying events such as hospitalizations from occurring. “A small investment now might save families a lot of time and money as the disease progresses – a type of maintenance. Americans want their cars to run smoothly so we invest money each year in their maintenance to avoid a worst case scenario and much larger costs if it breaks down. Why not invest in our loved one’s maintenance so they can have a better quality of life?” says Fodrini-Johnson.

Families can find a Professional Care Manager at www.caremanager.org or locally at www.EldercareAnswers.com and should look for those with experience and certifications. Families hiring Care Managers should be sure the Care Manager is a member of the National Association of Geriatric Care Managers (NAPGCM).

About Eldercare Services: Linda Fodrini-Johnson, MA, MFT, CMC, is the Founder and Executive Director of Eldercare Services and past President of the National Association of Professional Geriatric Care Managers (NAPGCM). Eldercare Services has continuously served adults of all ages for 24 years. She was named one of Bay Area News Group’s Hometown Heroes in 2010.

The diverse group of 20 certified, Professional Care Managers has backgrounds in Nursing, Family Counseling, Psychology, Physical Therapy, Social Work, and Public and Health Administration. Eldercare Services is a pioneer in a unique delivery of services, providing counseling, Professional Care Management, In-Home Care (http://eldercareanswers.com/), family support groups and community education serving Bay Area seniors and their families with offices in Walnut Creek, Oakland, San Francisco and Larkspur, California.

For more information on Eldercare Services, visit www.EldercareAnswers.com.

Contact: Danielle Miller | Marketing Communications Manager
Eldercare Services | (866) 760-1808 | www.EldercareAnswers.com

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Job Available: Director of Marketing and Sales

sales graphicJob Available Now!

Director of Marketing and Sales

Eldercare Services, a Professional Care Management and Home Care Services company is seeking the right person for this Director position.  The Director of Marketing and Sales will play a key role in strategic business development, will network with business partners, and will oversee the Marketing, Sales, and Outreach team.

 

Key Responsibilities

  • Develops and implements strategic marketing plans and sales plans and forecasts to achieve corporate objectives for products and services
  • Develops and manages outreach/marketing operating budgets
  • Plans and oversees advertising and promotion activities including print, online, electronic media, and direct mail
  • Participates in the development of new products, product positioning, and pricing strategy to produce the highest possible revenue stream
  • Oversees and evaluates market research and adjusts marketing strategy to meet changing market and competitive conditions
  • Establishes and maintains relationships with industry influencers and key strategic partners
  • Oversees , coaches, and mentors Sales and Marketing and Outreach team members to create a collaborative and cohesive team environment
  • Prepares periodic outreach, marketing and sales reports showing sales volume, potential sales, and areas of proposed client base expansion

Essential Skills/Abilities

  • Excellent communication and relationship-building skills
  • Ability to generate and actualize creative marketing and sales campaigns
  • Excellent judgment and decision-making in complex situations
  • Strong Coaching/mentoring/employee development skills
  • Excellent analytical and problem-solving skills
  • Strong organization, prioritization, and results-orientated implementation skills
  • Must be results-oriented, while working within a highly service-oriented, client-centered company.
  • Computer proficient in interactive databases, CRM, web 2.0, and Microsoft Office (including Excel)
  • Must be able to drive to perform outreach duties throughout service area; must provide own vehicle and insurance; must have and maintain a good driving record

Education and Experience

  • Bachelor’s degree in Marketing or Business; a Master’s preferred. 
  • At least 7-10 years of related sales and marketing experience, preferably in a social service or health care environment, with progressive sales management responsibilities
  • Demonstrated in-depth sales and marketing techniques and financial principles.
  • Prior experience in a fee-based, for profit service environment preferred
  • Strong computer skills
  • An equivalent combination of education and experience will be considered

We offer competitive salary and benefits. Interested candidates should email a resume with a cover letter and salary requirements to vickic@eldercareanswers.com.  Please be sure to note: Director in the subject line. You can also fax the information to (925) 945-1720. To learn more about our company, please visit our website at: www.EldercareAnswers.com. Our mailing address is Eldercare Services, 1808 Tice Valley Blvd., Walnut Creek, CA 94595.

Extended happy family standing in the park.

Dementia and Glasses/Hearing Aids

Director of Client Services, Chris Rose-Franks, PTA, MPA, CMC

Glasses and hearing aids: The unheralded quality of life features that, all too often, are taken for granted. My client recently had the unfortunate experience of having her glasses break – more specifically the frames. She has a dementia diagnosis and it was a very sudden and distinct change in her reaction to her surroundings and to her caregivers that was most striking. Since this frame breakage has happened before, I quickly got them repaired so her “world” could return to her “normal”. A person with dementia is so used to things in their environment maintaining a certain way that when any aspect of that equilibrium is disrupted it can have a very significant impact.

Vision and hearing are such simple yet very vital senses that must not be overlooked. Clearly labeling eyeglasses with a white out product so your permanent marker can show up is one trick. The same goes for taking a photo (so easy these days with smart phones) of the glasses on the person’s face so if they are ever lost in a hospital transition or misplaced in a congregate living environment you have an easy way to identify them. This trick was helpful with another client when her hearing aids went missing. Taking a photo (as well as keeping the model and style number handy) of those small devices made the search in Lost and Found a bit easier to rule out from the collection of hearing aids the nursing home had amassed.

Speaking of hearing aids – this is another area that, new batteries and plenty of them, can be so vital in assisting the person with dementia to really enjoy and participate in their surroundings. Like glasses, when a person can’t hear adequately, it adds to their confusion or desire to be reclusive and withdraw. Ensuring hearing aid batteries are unplugged at night and reinserted properly in the morning can be such a simple step and so necessary to ensure your loved one’s quality of life is maintained to the highest degree possible.

Linda on the Radio Airwaves!

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Listen to Linda Fodrini-Johnson, MA, MFT, CMC, Founder and Executive Director of Eldercare Services on Call Kira About Aging! Radio Show Hosted by Kira Reginato on Saturday, November 19 from 2:00 pm to 3:00 pm.

To Listen:

KSRO 1350 AM | www.KSRO.com and hit “ListenLive” or www.FOX910.com
Santa Rosa, California

 

 

 

My Husband Has Alzheimer’s

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Watch the video blog by clicking here.

“I feel so alone and even though I attend a support group, the feelings of loss, anger and love make my head spin.” 

“It is hard for me to articulate my feelings of confusion and it seems like a betrayal to the man I have loved so deeply for over 50 years.”

Being a spouse, wife or husband of someone with a dementia is a trial, not just a journey.  The well spouse often feels guilty for their honest feelings – this journey of love and care needs a “professional” guide.  It would be a gift to both the well spouse and the person in need of care to consult with a Professional Geriatric Care Manager at least once a month or every 6 weeks.

The well spouse needs to be affirmed, re-directed at times and given permission for self-care.  Because, without “self-care”, well spouses can end up in the cardiac or stroke unit of their local hospital and then who cares for that “beloved” husband or wife? 

The dementia journey can be 10-20 years.  It can be a time of love and moments of joy if the well spouse can find balance and ways in which to affirm themselves.  This takes some coaching and guidance often by a professional very aware of dementia behaviors and the interventions to use for each situation.  

It also means that well spouses have to share the care with other family members (and ask for specific help), community programs and caregivers trained in dementia care (often these come from agencies with excellent training programs).

All of our caregivers are given training and are exposed to the family journey of “dementia” care.  Be sure when you do hire an agency they can tell you they have provided this training and they provide 24/7 assistance with any behavioral issue.

Be a real loving spouse – take care of yourself and check in with a professional to be sure you don’t get off track!

Staying Connected Equals Staying Sharp

Julianna Dickey, MSW, LCSW

My Aunt Frances turned 100 this past January.  She is the eldest of four girls, including my mom, who all predeceased her.  A fun topic of discussion in my family is about the fact that she took her social security early, at 62, not knowing if she would live to the age of 65!  She made that and then some.

One of the things that has kept her going all of these years, besides children, grandchildren and great-grandchildren, is the love of the piano.  She majored in music at her alma mater, giving a senior recital at graduation, and has continued to play since then.  She still plays regularly at church services and is the pianist at the town’s senior center.  I asked her what had helped her keep mentally fit and she attributed this to the continued piano playing.

Her latest performance occurred three days after she turned 100 when she gave a piano recital at her church.  During that same week, she was interviewed by the state newspaper and a local radio station.  Of course, the repeating question asked was: “What would be your advice to others as to how to live a good, long life?”  Her response: “Set a goal in mind.  Continue to work at it; never give up.  It takes discipline, time, and work but if you do this, you will do better in everything you try.”

In thinking about this, it seems to me that it has not only been my aunt’s devotion to an interest and a goal, but the social context in which this has taken place.  Her life interest has been one which not only has been of benefit to her, but one which has allowed connection to other individuals and to the entire community.  It seems to reinforce a crucial need of seniors: to feel that they are still of value, continuing to play a vital role, not just waiting to die.  That, I think, was what Erik Erikson was referring to in his concept of the final stage of human development: Ego Integrity vs. Despair.

Aunt Frances is a role model for me, and for anyone facing getting older.  Finding what you love in life, and letting that interest connect you to others outside yourself as much as possible, can enrich not only your own life, but the lives of all those around you as well.

A Youthful Aunt Frances (Top Left)

Aunt Frances, Playing the Piano at 100

The Knock on the Door & Mom’s Purse is gone…Tell your Aging family members not to open the door to strangers!

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Elder abuse is rising. Even though my mother is bright and doing well living alone, which she prefers, she is a target just because of her age!    Mom is almost 88 and out and about going to clubs and driving friends around.  She lives in a major urban city and has since her birth.  The only help I provide for her is a personal assistant who acts as her personal secretary making appointments, reviewing mail and helping her with phone calls – because of her hearing loss she can’t understand accents or phone tree instructions.

 A week ago, she had a knock at the door. A woman asked to use a portable phone because she said she was locked out of her home.  Mom gave her the phone but of course the number was busy.  Then she asked for water and when my mother went to give her a cup the woman followed her inside making comments on how my Mom’s home reminded her of her Grandmother’s.  My mother became suspicious at this point and told her she needed to leave. However, the woman saw the candy dish and asked for candy.  Again, Mom says, “Take some and get out of my house.”, not knowing Mom’s purse was now under the woman’s coat!

 Mom of course had her keys, checkbook and credit cards in that purse.  She changed her locks with the help of a grandson, notified all the credit card accounts and the bank.  She has received two calls, one to cash a check for under $200 and another to charge $4,000 at an appliance store.  Mom stopped those transactions. 

 This is a lot of stress on an elder.  Thank God she has her personal assistant to help with all the paperwork that this event brought to her.

 The bottom line is, tell the elders in your life not to open the door for strangers – especially if they live alone.  The police officers told my Mom this and I hope she listens.  It is hard for her not to always be kind.

Anger and Caregiving

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Caring for another 24/7 and giving your all to one you love can be exhausting, frustrating and bring about “anger” in ways that surprise you, the family caregiver.

 Asking yourself, “Was that me?”, after hearing yourself shout at someone who doesn’t understand due to a cognitive loss or dementia.   Or, maybe you find yourself throwing something or being a little rough in dressing or caring for another.

 Losing your patience is normal.  Looking at that loss of patience as a “red flag” is helpful. It is a signal that you need a little “self-care” and it is time to bring in help or take a break.

 Some helpful hints in managing anger:

 1)         Be sure you can say at the end of each day that you did something just for yourself like a hot bath, reading for 30 minutes, a walk with the dog etc.

2)       Acknowledge that it is ok to lose your patience.  It is not ok to have this frustration transform into anger that could put you and the other in danger.

3)       Join a support group.  Get affirmation for your frustration from others in the same boat.

4)      Take an “anger management” class.

5)       Ask for help.  Be specific if asking family members to share the caring.  Say to your sister, “Could you sit with Dad on Tuesday from noon to five while I take a Yoga class”?  Don’t just say, “I need help.”

6)       Hire asisstance and use the time off for self-care even if this is only 2-4  hours once a week.

7)        Forgive yourself and make “balance” a part of each day by finding ways to give to yourself.

 Copyright:  Linda Fodrini-Johnson 2010

5 Simple Rules to Happiness

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

 This was given by a 92 year old client to a Care Manager in the mid-west:

 ”Remember the five simple rules to be happy:

 1. Free your heart from hatred.

 2. Free your mind from worries.

 3. Live simply.

 4. Give more.

 5. Expect less.”

Alzheimer’s and Meal Time

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Recently, at a class I was teaching, someone asked why her mother with Alzheimer’s dementia would not eat in the skilled nursing home she was in when at home she didn’t have a problem.

 Often, in medical and residential facilities, they give the patient too many choices, a challenge for those with dementia.  I told her to take off all the glasses and cups of fluid (they had given her juice, water, milk and tea) and just leave one liquid on the tray at a time.  The same for foods – if a plate is given with too much food on it – it can easily overwhelm those with a dementia.  So, think about no more than two foods on the tray or in front of a family member with dementia at a time.

 The same holds true for utensils – just put the utensil needed for the food in front of your Alzheimer family member.  For example, if you give someone a bowl of soup – just the spoon. 

 These few shifts in the environment made all the difference for this client’s mom.