When Our Parents Become Sexual Beings on Our Watch

Eileen Zagelow, BA, CMC | Professional Geriatric Care Manager/Director of Care Management Services

Many jokes have been shared over the years regarding the idea of parents having sex. Everyone knows they must have but no one wants to think about it! And then one day there it is bigger than life!

I spoke with a daughter recently who received a call from a facility stating that her father was being sexually inappropriate with the caregivers. He was getting” overly friendly” in his words and in his touch. It was also reported that he now had a girlfriend and the staff had found them lying on the bed in his room on more than one occasion.

The daughter who was aghast upon hearing this, immediately shared the news with her brothers who were surprised, although not as anxious as she was about the report. And then she called me.

“Susan’s” father has dementia. He has been diagnosed with mid-stage Alzheimer’s disease and has always been completely socially appropriate. He never dated after his wife passed away 8 years ago. They were like “two peas in a pod” and this daughter was so taken aback that this was occurring and at this time in his life. She was saddened as she felt that the depth needed to engage in a “meaningful” relationship was lacking. The family had legal concerns as well.

It is so difficult and yet important to remember that sexual attraction is an innate part of our humanness. Unfortunately, loss of social inhibition can be a very large part of dementia. In addition, the need for partnership can be very strong for a person who is having much difficulty navigating through their memory loss and/or judgment issues, especially when the person has had a meaningful relationship previously.

As family members, we have to try to step back and view this piece of the process through a clinical eye or at least speak with someone who can assist in framing this picture more clearly. Most facilities are equipped to deal with such behaviors and have appropriately trained their staff. However, as with life, each situation is unique and may require a special care plan and/or oversight.

As a Certified Care Manager, I was able to assist Susan with her father’s journey and, by extension, with her own as well. Dementia can exhibit in many ways and is inconsistent from person to person. It is so important to digest and listen with a trained ear when sexual behavior presents itself. As with most behaviors, appropriate communication and environmental support are key factors in a successful care plan.

Singing in the Rain…

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

When visiting a small residential care home to see a client I came at coffee hour and they were doing a sing along. One of the residents is very impaired with a dementia and can’t talk in complete sentences. Since I had prior experience running a day program for those with dementia years ago, I am very comfortable talking with her and responding to facial expressions and some of the words.

This woman, who is not my client, seems to always want to talk with me – I guess “dementia” is the one foreign language I have mastered! And, since she is not a family member, I have no history with her and we just have the moment of connecting words, facial expressions and feelings.

What truly surprised me on this most recent visit is this woman who can’t speak in a complete sentence or hold a thought very long knew every word to the tunes of our “grandparents” – she didn’t miss a verse of “You are my Sweetheart” or “Take me out to the Ball Game.”

The memory for music is held in a different part of our brain than memory and language. I have been thinking maybe we all need to put the names of those we love to a tune so we can sing it all our days.

Without a memory, you might not have words but you can still connect in ways that lift the spirit. Try “old” tunes to pass the time with those you love that might have a dementia like “Alzheimer’s”.

Mom is 88 and says she wants to have a baby?

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Can you imagine your mother saying that? Well, it is not uncommon for someone with dementia to see themselves as much younger and yearn for the joys of holding and loving a new born baby.

The family that heard this did all they could not to laugh but respected their mom with a lovely response. I think that is the lesson – listen and respond nicely and then change the subject.

But, I wanted to talk about what “baby” might mean to someone with dementia. It could be the need to care for something – try to give Mom pets or plants that she needs to care for and nurture daily.

Sometimes “baby” can represent “new”. What can you add or do that is new? Ideas: paint a wall, buy some new colorful shoes, bring in a child to visit if all your little ones have grown up. The honesty and freshness of children can be a great joy to those with dementia – but be sure this is time limited for both the visitor and mom or dad with a dementia.

The lesson here is that all requests are not concrete – but are often metaphors for something you can respond to in a creative way!

Weekend Caregiving for Aging Family Members

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Do you share caregiving duties with another family member? Do you give the primary caregiver in your family time off? If you answered yes to one of these two questions, you are not alone. Thousands of families are providing care for an aging relative. Up to 70% of all care is provided by families in the Untied States.

If you work all week and then get mom or dad for the two days you are off, it can be stressful if you have not had any training or are unsure of how to communicate effectively with someone who has a dementia. Actually the latter could make your two days extremely stressful if you don’t know the tricks of effective communication.

A few helpful hints to being a short time (or relief) family caregiver:

1) Check in with the person who was providing care the day before to see what the issues or behavior was – so you will know if something is new and warrants a call to a doctor.
2) Take a class on how to communicate effectively with someone who has a dementia (we offer monthly free classes at Eldercare). This can save you hours of frustration.
3) Have a routine that is similar to the routine during the other days of caregiving – times of meals, medications, walks, favorite TV shows or movies.
4) Have a plan to deal with boredom or increased anxiety – such as a car ride to watch boats coming and going from a dock or children playing at a playground or to a vineyard or orchard.
5) If possible, ask the person you are caring for to help you – fold towels, laundry or napkins – cut coupons from the Sunday paper. These tasks make the care receiver feel helpful. Don’t be fussy – what ever they do, say, “Thanks – that saved me lots of time”!
6) Pets can be entertaining and soothing – but also, can be more work. So use caution when adding pets to your home or that of your parent.
7) Try not to correct misinformation unless the person is at risk – just have a response that is non-committal – like, “That is interesting.” Or “Oh, really?”. If conversations get too crazy, just change the subject – bird baths or feeders are great for leading someone away from a stuck place to watch the birds.

These are just generic ideas – each individual and family might have different issues and an hour with a “geriatric coach” otherwise known as a “care manager” might help you design activities that lighten your load and reduce stress and anxiety for everyone.

Is Mom’s Home Making Her Alzheimer’s Worse?

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Many individuals experience great anxiety when they see items in a home that they once used and operated but no longer can due to the advancing ravages of a progressive dementia.

Most families and professionals feel home is the greatest place of comfort – and for many that is true.  In fact, for some individuals with a dementia, a trip away from the home causes great anxiety and challenging behaviors.

However, it has been my experience with some individuals who see a bank statement or a cooking utensil, that they once used but now don’t know what to do with that item, become very anxious.   Sometimes they can become angry thinking someone or something made the items not usable and this anger gets projected on the spouse or family caregiver.  This is because they are constantly reminded by the familiar of what they can’t do and that causes great frustration.

Those individuals, who experienced a high level of anxiety and frustration in the home, often settle down in a “dementia designed” care facility.   This is because they are not presented with any activity or request that reminds them of what they once did.

One of my clients became extremely angry whenever she saw her husband start to cook (in 60 years he had never boiled water).  She would yell at him to leave the kitchen – yet not be able to make a meal.  He learned to gently get her in the den with a cup of tea and then he would quickly prepare a frozen meal, put it on the table and tell her the dinner she made was done.  This worked for him, but for others it might not.

The environment can be the problem, as can be our communication style.  Learning new tools to live each day with a family member with a dementia, such as Alzheimer’s, is critically important to preventing caregiver burn out.

If you are unsure of what is best for your parent find a Professional Geriatric Care Manager to give you an objective assessment of what would be best for all family members based on values as well as needs.

Dementia: 101 – For Families Experiencing the Challenge

This Workshop Covers:

• An overview of Dementia
• Practical applications and situations
• A short film on how to communicate with those with dementia more effectively
• Self-Care: managing stress, caregiver relief

Led by a certified, Professional Geriatric Care Manager of Eldercare Services.

Eldercare Services – Walnut Creek
1808 Tice Valley Blvd., Walnut Creek, CA 94595

10:00 am  – Noon
Info/RSVP: 925.937.2018
RSVP 3 days prior to class

No Cost

Not Correcting Those With Dementia…

Professional Geriatric Care Manager Supervisor Eileen Zagelow, BA, CMC

…unless it is necessary. When asked if she tasted the ribs at a recent bar-b-que my mother said, “No, I didn’t serve myself.”  One of the guests said, “Well, you were right behind me in line”.  Mom looked confused and I just changed the subject to the ingredients in a salad on her plate.

Later on while cleaning up the kitchen (something she still does a good job at) I asked her again if she tasted the ribs and she again said, “No, I didn’t serve myself”.   I just responded with, “oh, that’s too bad I will make hem again the next time you come for dinner”.

When an individual with a dementia, or illness that causes short term memory loss, makes an error, it isn’t recommend that you correct everything they say that isn’t actually true. When you are constantly correcting someone they start to feel bad about themselves and it actually affects self-esteem and could cause depression.

You do need to correct misinformation like the wrong day of an appointment, party or other date.  And
when you do this correction – do it lightly such as, “I know I can’t keep all these dates straight myself – let me put it on your calendar.  I’ll call you the night before so you have a little warning.”  However, you might also need to call the morning of the appointment as well.   Some family caregivers wait till the hour
before… choose a timing that works for you and your family member.

The Family Circus II: Walking the Tightrope of Elder Care

The Family Circus II:  “Walking the Tightrope of Elder Care

Community Seminar at St. Andrew’s Presbyterian Church
1601 Mary Drive, Pleasant Hill, CA  – Invite your friends & neighbors!

Saturday, October 15, 2011 | 8:30 – 3:00 – no charge, refreshments provided.

RSVP:  Eldercare Services 925 937-2018 or Info@EldercareAnswers.com.

Why Attend?  Watch the Video!  Click Here.

In order to…

  • Become aware of entitlements and benefits that will help pay for long term care.  What legal tools do you need?
  • Become prepared to be a family caregiver with information that will save you time, stress and resources.
  • Learn what Alzheimer’s is and isn’t and what can be done.
  • Gain tools to help with challenging behaviors, resistance and family discord.
  • Find answers to emotional dilemmas that caregiving presents.

Don’t lose time away from work or extended family – become an empowered family.

This is a day of lectures and breakout sessions presented by professionals focused on positive Aging.  We will have an Elder Law Attorney, Certified Geriatric Care Managers, Physicians, Nurse Practitioner and Licensed Family Therapists, who are all local and experienced in working with families present their knowledge to empower you.  This knowledge will allow you to find a balance and affirm your need for self-care as well.

Local providers of support to Elders and their families are sponsoring this event and will be available to answer your questions prior to the sessions starting and during our breaks.

It takes village to provide good care and we live in a supportive community.

Caregiving Statistics

Caregiving increases with age: 78% of all caregiving is provided by the family (mostly spouse or adult child). The average age of a caregiver who is caring for someone over 50 is 63.  The average length of caregiving is 10 years.

Please contact Info@EldercareAnswers.com for a full program.


Visit The Family Circus Elite Sponsors’ websites:

The Chateaus of Pleasant Hill | Ridgecrest Pharmacy | Aegis of Pleasant Hill | Eldercare Services

Gray Matters: The Challenges of an Aging Society

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

Founder and Executive Director Linda Fodrini-Johnson, MA, MFT, CMC

On June 2, 2011, Linda Fodrini-Johnson, MA, MFT, CMC, along with other experts on aging presented at the Walnut Creek Library in Walnut Creek, CA as part of the Library Foundation’s Live! 

Linda’s discussion includes the importance of communicating your values to your family and geriatric professionals to ensure you always live life your way, no matter what the circumstance. 

To view the presentation, please click here.

The What Ifs Of A Longer Life – Webinar

Dawn White, MPH, CMC, Certified Professional Geriatric Care Manager, Eldercare Services

On June 23, 2011, Dawn White, MPH, CMC, hosted a webinar at RG Financial Partners, Inc. discussing “The What Ifs of a Longer Life”.  A workshop to promote staying in control of your life by making informed decisions as we age. 

The topic pertains to adults of all ages and touches on what we should all expect as our population is living much longer than previous generations.  If we know what to expect and communicate our values, we can prepare for the “What Ifs” of life.

Please click on the link to listen to the informative presentation. The What Ifs Of A Longer Life.